The hope of an eleven-year-old boy, Gideon Nnuro, to become an engineer is hanging in the balance as he is battling a congenital disorder.
He lives at Mbereko-Kwajokrom in the Sefwi-Akontombra District of the Western North Region with his helpless parents who have been struggling to get him treated at the Komfo Anokye Teaching Hospital (KATH) in the Ashanti Regional capital, Kumasi.
The boy has been on diapers since birth. Doctors, who diagnosed him with "spina bifida, chronic osteomyelitis of the left calcaneus from talipes and enlarged rectum", say his condition makes it difficult for him to control urine, as well as fecal matter, the reason for which he has been on diapers since birth.
He has undergone a number of major surgical operations. Besides his inability to control urine and fecal matter, he has also developed swollen feet, weak lower limps and difficulty in walking among others.
Parents cry for help.
Gideon's mother, Mary, has six children. She struggles regularly travelling from the Western North Region to the Ashanti Region with the boy. A number of specialists, including neurologists, urologists and pediatricians at KATH are said to be managing the boy's condition.
At age one, Gideon was treated of the myelomeningocele (a severe form of spina bifida in which the spinal cord and nerves develop outside of the body and are contained in a fluid-filled sac that is visible outside of the back area) through a surgical procedure where his condition was repaired at the lumber level which further resulted in urine incontinence since.
At age three, Gideon undertook a rectal surgery to reduce the size of his anal opening and has since been having difficulty passing stool. At age eleven, Gideon began to undertake a Serial Contact Casting on monthly basis to correct the osteomyelitis.
Treatment is said to have delayed due to defaulted follow-up casting.Ulcerson his heels are however being healed.
"It is difficult engaging her in a conversation. Tears of sorrow frequently flows down her eyes.In fact, the woman is going through a lot," a worried staff at the told The Herald.
At the hospital's Neurology Department, the distressed mother told The Herald that she had not been able to engage herself much in her peasant farming responsibility owing to the boy's ailment.
"It is difficult for us as a family. I cannot engage myself much in my peasant farming activities. All our savings have gone into taking care of my child. An external financial help will be much appreciated. I am pleading with individuals, cooperate organizations, NGOs and philanthropist to come to our aid. Gideon is a brilliant boy but ill health is what is making it hard for him to live a normal life and as such realise his goals," she said.
Sharing his ordeal in a telephone interview, the boy's father, Jacob, stated: "My brother, it is indeed a difficult situation that we are facing as a family. We are financially hard hit. I am appealing to the general public for help".
The boy's family is not alone in the grief. A man, with in-depth knowledge about the plight of the family disclosed to this outlet "It will not be wrong to evaluate that Gideon's parents, Madam Mary Yeboah and Mr Jacob Yeboah, have spent their life-time investments on Gideon's medical bills. His parents, who are peasant farmers, have toiled hard to raise money to take care of the medical bills." Although this paper has learned that Gideon has almost completed the major surgical operations, the defaulting spectacle with which to routine weekly review is currently witnessing is a great worry to both staff and the family.
"Considering the poor economic status of the family and the high cost of medical bills already borne by the family, it will be befitting if there was external financial support for the family to take care of the young boy's upkeep in future," a disturbed voice explained to this outlet.
Gideon's hope of becoming an engineer
At eleven years, Gideon is still in Primary Two at the Rotzel Primary School because of his condition. He is currently out of school as his parents are in search of treatment for his ailment. When asked about his future plans, he told The Herald that he wanted to be an engineer.
"I want to be an engineer but the sickness is preventing me from learning," he said. This paper understands that Gideon's parents are unable to meet the weekly scheduled reviews due to financial constraints. This, many believe could worsen his medical plight.
Gideon won't be able to walk.
A medics has dropped a hint that the boy might not be able to walk.
This paper is told that Gideon will have a sound mind, live a normal life but will continue to have urine/stool incontinence as well as difficulty in walking.
Individuals, philanthropists, institutions, organisations wishing to help little Gideon can reach out through the following contacts: Mary Yeboah 0545364345/ Haruna Sumaila Abugri of The Herald newspaper 0247244879.